I haven’t passed out in over a month! All that quiet non-jinxy woo-hooing paid off. I even went to the store last week and was able to walk (albeit leaning on a cart) without using the beep-beep cart! When the checkout person asked me how my day was going, I was hard pressed not to jubilantly shout “SUPER GREAT, I AM WALKING ON MY OWN, HOW ARE YOU?!”
(Apologies to Allie.)
POTS can go into remission and then come back without a lot of warning, so I’m not holding my breath that the fainting episodes are gone for good, though I sure hope they are.
My hives are also getting better, though still very much around. I hadn’t been swelling in the face much, but last week made up for it. I think I woke up with some facial area swollen every day, and on one day it meant that I had to go to the pool to shoot some underwater footage with a face that resembled a chimpanzee, no offense to chimpanzees.
This video has that footage. My swollen face is not in it, though. (You are welcome for that.)
When my upper lip is swollen, it makes the space between the bottom of my nose and the top of my lip longer. It completely changes the way I look and it’s pretty alarming. It’s something I noticed celebs who get lip injections get… a longer upper lip:
I can’t understand why anyone would do it on purpose. Anyway, the swelling seems to be calming down quite a bit, so quiet hooraying!
So… let’s see, in my last health update I told you we were investigating female hormonal imbalances, but everything came back normal.
However! We did find out my pituitary gland was not doing so hot. Despite my T3 and T4 thyroid levels being quite low, my pituitary gland was not secreting any TSH (thyroid stimulating hormone) to tell my thyroid gland to produce more. Remember this guy?
Yeah, he’s just decided to take a nap instead of shout.
So I’m on some new supplements that are supposed to nourish my pituitary gland (This is a thing? That is possible?) and also a new iodide / iodine supplement in an attempt to bypass the tired pituitary and stimulate the thyroid gland directly (This makes more scientific sense).
It’s been a month or so on the new protocol and I am about to go in for more thyroid tests to see if it has helped. I certainly have felt more energetic, so I hope we’re on to something. If it hasn’t helped, it’ll be time for thyroid medication again.
My iron and potassium levels are finally up in the normal range, so that’s also helping my energy levels. It’s so hard to know what might really be working / helping, and what’s just voodoo, but I’ll just be grateful for the upswing.
So, that’s about it. No more bed rest, and I’m pretty functional. I think being happier with my work situation helps a lot. I continue to make good progress with my exercise protocol (largely Yoga with Adriene), and should be greenlighted to try swimming laps again soon. Fingers crossed!